Patient Forum

The CyberKnife Patient Forum is designed to provide a place for people who have been diagnosed with cancer, their family and friends, to exchange useful information and provide support to one another. The Forum may also help people find answers to questions they have about the CyberKnife treatment experience. Accuray strives to facilitate these exchanges and encourage discussions. Recently we have experienced some aggressive or inappropriate spam postings. We are diligently working to resolve this issue and thank you in advance for your patience.

Birgit Fleurent, Chief Marketing Officer, Accuray Incorporated

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Survey for MedCAC meeting in April
radsrus
Posted: Monday, February 22, 2010 5:58 PM
Joined: 10/10/2008
Posts: 4435


Dear CyberKnife Centers, Patients, and Clinicians, On April 21st, the Centers for Medicare and Medicaid Services (CMS) has scheduled a Medicare Evidence Development and Coverage Advisory Committee (MEDCAC) meeting to review evidence on the use of external beam radiation therapy (intensity modulated radiation therapy, stereotactic body radiation therapy/CyberKnife, proton) and brachytherapy for the treatment of localized prostate cancer. One of the potential outcomes from this meeting may include: o A National Coverage Determination (NCD) eliminating coverage of stereotactic body radiation therapy/CyberKnife and/or other therapies for prostate cancer altogether As you may know, CyberKnife is currently covered by Local Coverage Determinations (LCDs) across the country. Over the past two years, four regional Medicare contractors released draft policies that proposed to withdraw coverage of CyberKnife for the treatment of prostate cancer. In each of these regions, coverage was ultimately provided after hearing from physicians and patients supporting access to this treatment option. This could not have been accomplished without strong advocacy. But these regional gains are now in jeopardy if CMS decides to put in place barriers to access at the national level. We know that patient opinions are considered critical when national organizations such as CMS decide upon healthcare policy and coverage. We are seeking the help of CyberKnife patients through you, their physician, and urging them to support the treatment of localized prostate cancer via CyberKnife. Cancer patients and their families have the right for their voices to be heard! The CyberKnife Coalition (CKC) has set up a website survey that allows CyberKnife patients to voice their concerns and urge CMS to continue to provide coverage. Please make your CyberKnife patients and their families aware of this survey and urge them to take action today by clicking the survey link. Deadline to take the survey: March 31, 2010. http://www.surveymonkey.com/s/LKKP2XP

 

Clinton A. Medbery, III, M.D.
St. Anthony Hospital Cyberknife Center
(405) 272-7311
buddy@swrads.org

Mail to:
Clinton A. Medbery, III, M.D.
Southwest Radiation Oncology
1011 N. Dewey Ave. #101
Oklahoma City, OK 73102

 


Chico
Posted: Tuesday, February 23, 2010 7:21 AM
Joined: 10/10/2008
Posts: 446


Thanks for the advisory. 

Submitted Survey this a.m. -

I Encourage others to take the time and submit survey- Patients, Family those considering treatment options.

It' good to share ideas on this topic that many of us consider very personal.

 

 


Donald B. Fuller, M.D.
Posted: Tuesday, February 23, 2010 3:00 PM
Joined: 10/10/2008
Posts: 370


In my entire career, I have never seen anything as polarizing as this particular topic - So I would encourage as much participation from as many participants as humanly possible - We may all rest assured that the opposing view will be very well represented -

Donald B. Fuller, M.D.

Radiation Oncologist

CyberKnife Centers of San Diego

477 N El Camino Real, Ste D101

Encinitas, CA 92024

(760) 230-6706

dfuller@rmgmed.com


DavidMatthew
Posted: Tuesday, February 23, 2010 3:25 PM
Joined: 10/10/2008
Posts: 44


I also filled out the form and sent it right away.  It does not take long for those of you who don't think you have the time.  Make the time and help out all the other men out there who will greatly benefit for the CK treatment.
viperfred
Posted: Tuesday, February 23, 2010 4:51 PM
Joined: 10/10/2008
Posts: 850


Survey completed! It was fast, everyone please take a few minutes to take the survey.
Question Mark
Posted: Wednesday, February 24, 2010 10:00 AM
Joined: 2/12/2010
Posts: 31


Submitted the survey yesterday.
ctwo
Posted: Sunday, February 28, 2010 3:11 PM
Joined: 1/17/2009
Posts: 7


Survey completed.
LeRoy Walker, M.B.A.
Posted: Wednesday, March 03, 2010 11:58 AM
Joined: 3/3/2010
Posts: 1


Dr. Fuller,

I want to thank you for all you did in your fight with my insurance to have this procedure.  I found the need to switch insurances to have the procedure elsewhere but cannot be happer with the results.  As a result of your sound counsel and clear explanation of varioous options, I feel the best choice was made for me and not just for the treating physician. My procedure was conducted in early February in Reno and based upon the results thus far, I would recommend it highly over ANY invasive procedure.  I was back to work part-time the following Monday and working full time the next week.  Thank you!


Donald B. Fuller, M.D.
Posted: Wednesday, March 03, 2010 3:50 PM
Joined: 10/10/2008
Posts: 370


Thanks for the update and glad it went well for you. I would agree that the overwhelming majority of our prostate CK patients are doing spectacularly well at this point. And we have quite a few 2-3 years out now . . . The further out they get the better they look!

 

Cheers



Donald B. Fuller, M.D.

Radiation Oncologist

CyberKnife Centers of San Diego

477 N El Camino Real, Ste D101

Encinitas, CA 92024

(760) 230-6706

dfuller@rmgmed.com


Dr. J
Posted: Thursday, March 04, 2010 4:21 AM
Joined: 10/11/2008
Posts: 1070


And the better you look!

 

Jerome J. Spunberg, M.D., FACR, FACRO
CyberKnife Center of Palm Beach
jspunberg@radiationoncologyinstitute.com
(561) 799-2828

 

Radiation Oncology Institute
10335 N. Military Trail, Suite C
Palm Beach Gardens, FL 33410
(561) 624-1717


Donald B. Fuller, M.D.
Posted: Thursday, March 04, 2010 3:02 PM
Joined: 10/10/2008
Posts: 370


You look marvelous!! . . . Absolutely marvelous!! . . .

Donald B. Fuller, M.D.

Radiation Oncologist

CyberKnife Centers of San Diego

477 N El Camino Real, Ste D101

Encinitas, CA 92024

(760) 230-6706

dfuller@rmgmed.com


Dr. J
Posted: Thursday, March 04, 2010 8:56 PM
Joined: 10/11/2008
Posts: 1070


Well, thank you, thank you...

 

Jerome J. Spunberg, M.D., FACR, FACRO
CyberKnife Center of Palm Beach
jspunberg@radiationoncologyinstitute.com
(561) 799-2828

 

Radiation Oncology Institute
10335 N. Military Trail, Suite C
Palm Beach Gardens, FL 33410
(561) 624-1717


raylock
Posted: Tuesday, March 23, 2010 5:58 PM
Joined: 6/4/2009
Posts: 16


Just logged in and found this.  I completed the questionnaire. If there is anything else I can do, please let me know.

ray

beachwolverine
Posted: Sunday, February 13, 2011 12:35 PM
Joined: 1/22/2011
Posts: 31


Dr. Medbery, After the April 21 meeting, what is the expectation as to how long before there is a decision on the NCD? If it eliminates coverage, is there an appeal process? Thanks
radsrus
Posted: Sunday, February 13, 2011 5:52 PM
Joined: 10/10/2008
Posts: 4435


The meeting was last April. There will be no NCD.

 

Clinton A. Medbery, III, M.D.
St. Anthony Hospital Cyberknife Center
(405) 272-7311
buddy@swrads.org

Mail to:
Clinton A. Medbery, III, M.D.
Southwest Radiation Oncology
1011 N. Dewey Ave. #101
Oklahoma City, OK 73102

 


ditty
Posted: Wednesday, June 08, 2011 9:50 PM
Joined: 6/8/2011
Posts: 5


What does this mean? Has the coverage been removed? Please clarify as I am confused.
radsrus
Posted: Thursday, June 09, 2011 1:52 AM
Joined: 10/10/2008
Posts: 4435


It is covered in most states, but not those covered by Trailblazer (OK, NM, CO, TX). CMS has decided against issuing a national decision

 

Clinton A. Medbery, III, M.D.
St. Anthony Hospital Cyberknife Center
(405) 272-7311
buddy@swrads.org

Mail to:
Clinton A. Medbery, III, M.D.
Southwest Radiation Oncology
1011 N. Dewey Ave. #101
Oklahoma City, OK 73102

 


lucky71143
Posted: Wednesday, September 28, 2011 11:56 AM
Joined: 4/23/2011
Posts: 8




<p>Diagnosed pc approx. June 08<br></p>


Chrisy
Posted: Wednesday, October 05, 2011 11:03 PM
Joined: 10/5/2011
Posts: 2


Would the mesh used to repair inguinal hernia interfear with CYBERKNIFE treatment
radsrus
Posted: Thursday, October 06, 2011 4:01 AM
Joined: 10/10/2008
Posts: 4435


Probably not

 

Clinton A. Medbery, III, M.D.
St. Anthony Hospital Cyberknife Center
(405) 272-7311
buddy@swrads.org

Mail to:
Clinton A. Medbery, III, M.D.
Southwest Radiation Oncology
1011 N. Dewey Ave. #101
Oklahoma City, OK 73102

 


 

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