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TN from injury
Ran
Posted: Monday, November 08, 2010 6:43 AM
Joined: 11/8/2010
Posts: 5


Recently had CK treatment at the nerve stems and spinal cord on my 5th cranial nerve. I have been having issues for over 34 yrs. and the VA has tried everything with minimal success. For the 1st time in 34 years my pain level has gone from a 10 to a 2 or 3. My side effects are: tired, double vision, bright flashes in left eye, weak muscle on left side and cannot chew on left side, sensitive to light and have to wear sun glasses (outside,driving day or night, and inside if lighting is bright) How long will these side effects stay with me?
Ran Veteran
radsrus
Posted: Monday, November 08, 2010 7:04 AM
Joined: 10/10/2008
Posts: 4435


Were you treated for trigeminal neuralgia or for a 5th nerve tumor?

 

Clinton A. Medbery, III, M.D.
St. Anthony Hospital Cyberknife Center
(405) 272-7311
buddy@swrads.org

Mail to:
Clinton A. Medbery, III, M.D.
Southwest Radiation Oncology
1011 N. Dewey Ave. #101
Oklahoma City, OK 73102

 


Ran
Posted: Monday, November 08, 2010 7:07 AM
Joined: 11/8/2010
Posts: 5


Treated for TN and neuropathy of the 5th cranial.
Ran Veteran
radsrus
Posted: Monday, November 08, 2010 7:09 AM
Joined: 10/10/2008
Posts: 4435


THen those are unusual side effects. You should get in to the treating physicians right away, and let them evaluate things. How recent was the treatment? You may even need a course of steroids briefly.

 

Clinton A. Medbery, III, M.D.
St. Anthony Hospital Cyberknife Center
(405) 272-7311
buddy@swrads.org

Mail to:
Clinton A. Medbery, III, M.D.
Southwest Radiation Oncology
1011 N. Dewey Ave. #101
Oklahoma City, OK 73102

 


Ran
Posted: Monday, November 08, 2010 7:12 AM
Joined: 11/8/2010
Posts: 5


Treatment was about 50 days ago and I was on steroids for 30 days. It appears that my 6th and 7th may have gotten some of the bleed over radiation during the procedure..which I knew was a risk.
Ran Veteran
Ran
Posted: Monday, November 08, 2010 7:15 AM
Joined: 11/8/2010
Posts: 5


I'm wondering how long it takes for the nerve to regin or is this usually perm?
Ran Veteran
radsrus
Posted: Monday, November 08, 2010 7:20 AM
Joined: 10/10/2008
Posts: 4435


Sounds like they are on top of things. Hopefully this will go away soon. I can't give you a time frame because we have not seen that set of side effects.

 

Clinton A. Medbery, III, M.D.
St. Anthony Hospital Cyberknife Center
(405) 272-7311
buddy@swrads.org

Mail to:
Clinton A. Medbery, III, M.D.
Southwest Radiation Oncology
1011 N. Dewey Ave. #101
Oklahoma City, OK 73102

 


radsrus
Posted: Monday, November 08, 2010 7:24 AM
Joined: 10/10/2008
Posts: 4435


Some things get better, others don't. It depends on the nature and extent of the injury. I think you will just have to wait this out and see.

 

Clinton A. Medbery, III, M.D.
St. Anthony Hospital Cyberknife Center
(405) 272-7311
buddy@swrads.org

Mail to:
Clinton A. Medbery, III, M.D.
Southwest Radiation Oncology
1011 N. Dewey Ave. #101
Oklahoma City, OK 73102

 


Ran
Posted: Monday, November 08, 2010 7:28 AM
Joined: 11/8/2010
Posts: 5


Thanks! I am so happy with the CK procedure results. Not living in disabling pain is wonderful. CyberKnife is a blessing!
Ran Veteran
JMR
Posted: Wednesday, June 15, 2011 10:35 AM
Joined: 6/15/2011
Posts: 1


My daughter, Teresa, has suffered with atypical TN for several years.  It was caused by an injury.  She has become addicted to prescription meds.  She had Gamma knife surgery 2-3 years ago but it didn't help.  Is Cyber Knife treatment recommended for atypical TN?  Her insurance would not cover this so it is a big and expensive decision.  What is the recommendation????


<p>My daughter, Teresa, has suffered with atypical TN for several years.&nbsp; She is now addicted to prescription pain meds and is in the hospital detoxing.&nbsp;&nbsp; She had Gamma knife surgery a couple of years ago but it didn't have any effect.&nbsp; Her pain is constant.</p><br>Is Cyber Knife treatment recommended for atypical TN?&nbsp; Her insurance may not cover it, so it is a big decision for us.&nbsp; Thank you.<br><br><br>

radsrus
Posted: Wednesday, June 15, 2011 7:05 PM
Joined: 10/10/2008
Posts: 4435


Atypical facial pain does not usually respond well to radiosurgery, regardless of whether it is Gamma Knife or CyberKnife.


 

Clinton A. Medbery, III, M.D.
St. Anthony Hospital Cyberknife Center
(405) 272-7311
buddy@swrads.org

Mail to:
Clinton A. Medbery, III, M.D.
Southwest Radiation Oncology
1011 N. Dewey Ave. #101
Oklahoma City, OK 73102

 


 

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