Patient Forum

The CyberKnife Patient Forum is designed to provide a place for people who have been diagnosed with cancer, their family and friends, to exchange useful information and provide support to one another. The Forum may also help people find answers to questions they have about the CyberKnife treatment experience. Accuray strives to facilitate these exchanges and encourage discussions. Recently we have experienced some aggressive or inappropriate spam postings. We are diligently working to resolve this issue and thank you in advance for your patience.

Birgit Fleurent, Chief Marketing Officer, Accuray Incorporated

  Print 
1 week post CK(2)
JAK1
Posted: Saturday, May 21, 2011 2:45 PM
Joined: 4/19/2011
Posts: 5


I am a rather recent lurker as I was diagnosed only 6 weeks ago.  I read, researched, met with many docs, interviewed patients, etc.. After all my research I chose to go to Stanford last week to Dr. Chang for a CK treatment.  My AN is rt side 2.8 cm at its largest, 2.8 x 2.4 x 1.9 and compressing the brain stem.  Moreover, calcified indication on MRI may be a hint of a possible internal hemorrhage. I had 68% comprehension rt ear, massive headaches, tinnitus and weak balance before the treatment. The team at Stanford is AMAZING! We flew from NY to San Fran and they made the whole process very easy. Day 1) Consult with Dr. Chang (Neuro) and Dr. Hancock (Radio) to discuss treatment outline, side effects, examine symptoms, etc.  Then detailed focus 10 minute MRI of tumor area with contrast. Day 2) Built the mask for the CK table. Next, CT scan with contrast. http://i174.photobucket.com/albums/w94/jjaakk/IMG_2587.jpg Day 3) This would be my first day of CK and I met the robot, lab techs, dr., etc.  Then I was strapped in and the music started.  It took about 40 minutes as the robot moved around me, I did not really feel anything.  They gave me 1 pill for nausea and 1 steroid for swelling and I was ready to leave.  I did notice that my balance had really diminished even more if that is possible.  I went back to the hotel to play with my son and hang out with my family. http://i174.photobucket.com/albums/w94/jjaakk/IMG_2585.jpg http://i174.photobucket.com/albums/w94/jjaakk/IMG_2586.jpg Day 4) Back to Stanford to meet the robot again.  This time I did feel a metal taste in my mouth about half way through.  Again treatment was about 40 minutes and continued to diminish my balance.  I took the same 2 pills after treatment. Day 5) Treatment was 40 minutes as usual.  I got to keep my mask as a souvenir.  This time I felt very fatigued, tired and disoriented.  I rested mostly until the next day as I had a 6 hour flight home. Back in NY.  I have been wobbling and sleeping for 3 days now getting my strength back a bit today.  I still have headaches (rear of skull and behind rt eye), tinnitus volume changes at time, i will start vestibular therapy soon for balance, hearing remains about the same from before the procedure, ear still feels full, a slight numb feeling at times when I swallow.. that is about it.. I went for a walk today, we live in SoHo.. people have NO patience here and the pace of life is fast.. so, wobbling down the street at .5 mph is a bit tough.. I am still happy with my decision so far.  I go far an MRI and audiogram in 6 months.  I will keep you all posted of my progress.  I was told by all NYC neurosurgeons to have surgery and I was still unsure when I got to California.  However, spending a few hours at Stanford changed my mind and made me comfortable.  They communicate extremely well and the facilities are fantastic.  I spoke to a few patients in the waiting room that had been to Stanford many times and they all had glowing remarks.   Thanks again to all who post on this forum as it really was a great resource to educate myself.  I wish you all health and happiness. . Regards, -JAK
40yr old male - AN right side 2.4 cm x 2.6 cm x 1.9 cm - diagnosed 4/11/11 - hearing comp 68% right side - compressing brain stem
Mahendra Warad
Posted: Saturday, August 24, 2013 2:46 AM
Joined: 8/22/2013
Posts: 1


Dear Jak

My father has been recently diagnosed with Acoustic Neuroma (Right Auditory Canal).

It would be really helpful if you could let us know how much does it cost for 3 sessions or how much did you pay for the same? This information will really help me to plan my finances.

Looking forward to hear from you!

Cheers.

Mahendra Warad.
 


Mahendra Warad

 

Jump to different Forum...