Patient Forum

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HCC from Hemochromotosis
Jamie Wilson
Posted: Wednesday, August 31, 2016 12:56 AM
Joined: 8/31/2016
Posts: 1

I was diagnosed with Hemochromotosis 3 years ago with an iron count of 9800 (different from the USA but 25 -250 are the normal figures) - with venesection sometimes 2 pints a week I got it back down but am now diabetic - had MRI scan 2 years ago and no cirrhosis of liver but 2 dysplastic nodules noted of 2cm - I had 12 on the AFP test - now last month had AFP of 600 ; went to South Africa (I live in north Mozambique) for MRI - showed nodules had grown 2cm to 4cm and are giving off T2 signals ; liver function tests abnormal but still the protein is good - I feel fine, no jaundice and eyes white white - am reading horror stories that I have 5 months to 5 years - the nodules are on top of the liver nothing inside - any help - could not see a specialist as had urgent safari to conduct
Posted: Thursday, September 01, 2016 5:19 AM
Joined: 10/10/2008
Posts: 4435

You need to get biopsies done. If cancer, might be treatable with CK

Clinton A. Medbery, III, M.D. Southwest Radiation Oncology

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