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CK for Gleason 7
wmc3
Posted: Thursday, February 19, 2015 3:35 PM
Joined: 2/19/2015
Posts: 6


Background:  I've been on AS since 2010 with a diagnosis of 1/12 cores positive, 5% involvment, 3+3 Gleason, 2.5 PSA.  Age 56 at diagnosis.   2 subsequent biopsies were identical with 1/12, 5%, 3+3 and stable PSA. 

Now, a recent biopsy comes in at 3/12 positive, 10-15% involved, all 3+4=7 Gleason,  PSA 2.3.  I'm now age 60 with no history of urinary problems.  One of the cancer centers near me has CK and in talking with one of their radiologists today he indicated that they don't usually recommend CK for intermediate risk PCa, particularly if more than one core has Gleason 7.  Instead, their recommendation is for 8 weeks of IGRT/IMRT along with 6 months of ADT.

I have been interested in CK and have followed it since 2010 and I am generally familiar with the procedures involved and some of the data to date.  I would have anticipated a more liberal view of its use than I saw today.

Anyway, I'm obviously in the process of reevaluating my treatment options with the change of pathology.  I know posters on this board have chosen CK with Gleason 7 scenarios.  I'd welcome any feedback on for cases similar to mine. 

I know there is not 20 yr data on a relatively new treatment method, but what is reasonable to expect about effectiveness and control rates?  There were certainly some reservations expressed today by providers of CK and I am not sure I fully understand why?

Thanks!

Mac 




radsrus
Posted: Thursday, February 19, 2015 6:15 PM
Joined: 10/10/2008
Posts: 4435


Not sure why they say that. Certainly don't know of any data to support it. See no reason not to use CK if that is your preference

Clinton A. Medbery, III, M.D. Southwest Radiation Oncology buddy@swrads.org
Raltrt41
Posted: Friday, February 20, 2015 5:40 AM
Joined: 3/20/2013
Posts: 44


Mac, I was recently treated at FROS for a Gleason 3+4=7. I had 4 of 4 positive cores and a PSA 5.4. My 3 month PSA was 0.9 and I am.almostl back to baseline on GI, GU, And sexual health F!or me, the fiducial placement and first month of side effects were worse than I expected, and probably worse than what many guys experience, but I am happy with my decision. Contact any of these superb forum doctors for an opinion on your case. Best of luck, Bill
Allen_E.
Posted: Friday, February 20, 2015 9:24 AM
Joined: 8/8/2010
Posts: 666


To my way of thinking, intermediate risk patients are the ones that SBRT is perfect for. Low risk can have AS; high risk may be able to be effectively treated with SBRT, but the standard of care is IMRT with a brachy boost. In Dr. Katz's 7-year review, he found that biochemical recurrence-free survival was 94% for low-intermediate risk guys like you. http://journal.frontiersin.org/article/10.3389/fonc.2014.00240/full What more could anyone want? I'd look for a different SBRT treatment center. Where are you located?
- Allen (not an MD)
radsrus
Posted: Friday, February 20, 2015 10:08 AM
Joined: 10/10/2008
Posts: 4435


I think that is a proper analysis. Low-risk patients do well no matter how treated, or maybe even if not treated in some cases. The real benefit of escalated biological dose such as with SBRT is in the higher risk patients.

Clinton A. Medbery, III, M.D. Southwest Radiation Oncology buddy@swrads.org
JAV
Posted: Friday, February 20, 2015 2:30 PM
Joined: 10/29/2010
Posts: 800


Mac :

When you say "radiologist"  do you mean radiologist or radiation oncologist ???  Big difference !!!

And if you meant radiation oncologist, I would be curious to know if he/she has a SBRT machine at his/her facility ..... catch my drift  ??

This is the first time I have heard that SBRT, such as CK is not recommended for a patient ( such as myself ) that had a 3+4 Gleason.  BTW, you may have had a 3+4 Gleason all along since your PSA increased but it may not have picked-up on the first biopsy since a biopsy only takes a sample of the prostate.

I did AS for a short while until my second biopsy came back a 7, up from a 6 ( 6 months later ).  My Uro said it was probably a 7 to begin with.

At my Center, CK was recommended ( without ADT ) for a Gleason of 6 and PSA < 20  or a Gleason of 7 and PSA < 10 ( my situation ). 

Good luck and please keep us posted and please see my numbers below my signature.  I feel I made the right decision ( for me ).

JAV ( not a MD, DO, or PhD )


Treated with CK 4-2011.  Gleason of 3+4 , PSA 3.7
 PSA on 7-13 , 0.3
 PSA on 11-13 , 0.3
 PSA on 5-14 ,  0.3
 PSA on 7-14 ,  0.2
 PSA on 11-14,  0.2

radsrus
Posted: Friday, February 20, 2015 3:50 PM
Joined: 10/10/2008
Posts: 4435


They just chose a new group to take over at our center where there is a CyberKnife, and I am told that the new guy said that he is going to send all prostates for seeds at his other hospital or for protons. Anyone want to guess where he has a financial interest?

Clinton A. Medbery, III, M.D. Southwest Radiation Oncology buddy@swrads.org
wmc3
Posted: Friday, February 20, 2015 5:31 PM
Joined: 2/19/2015
Posts: 6


Guys, thanks for all of the responses. To address some of the questions posed, I am in North Carolina. I met with a radiation oncologist at a major university's hospital that has a cancer center designation. And, the hospital has CK, which they apparently use primarily for Gleason 6 cases. (Also, I have been on AS for over 4.5 years. My first three biopsies were all identical: 1/12, 5%, G6. The recent biopsy showed the progression. PSA has remained between 2.2 and 2.7, with 2.3 most recently.) So, anyone had any experience with CK providers in the mid Atlantic region? And, I guess with CK's relatively short treatment duration, travel elsewhere for treatment may be reasonable. Did anyone travel to a particular CK provider out of your local area? Thanks again. Mac PS: Bill, sounds like your results are good so far. Good luck with that. Both your case and JAV's sound a lot like mine.
Raltrt41
Posted: Friday, February 20, 2015 7:57 PM
Joined: 3/20/2013
Posts: 44


Hi Mac, I live in the Atlanta area and traveled to Flushing, New York. If you go there, take your snow shoes and brush up on your Chinese ! BTW, there is a CK center in Atlanta, but I had one chance to get it right, soooooo...... Dr Medbery, I am saddened to hear of the new direction at your center.......follow the money.....words to live by, LaVerne ! Regards to all, Bill
JAV
Posted: Saturday, February 21, 2015 5:11 AM
Joined: 10/29/2010
Posts: 800


Dr. Medberry :

Wow !!  That news sucks , to say the least ......... and it's very disturbing ( IMHO )  that one person has that much power.  So, when you say a "new group" , do you must mean " the new business owner's"  ??  It makes me even more cynical than I may already be.   Too bad the patients aren't privy to this information when they walk in the door.  I certainly would like to know about the situation if I was a patient.

JAV


Treated with CK 4-2011.  Gleason of 3+4 , PSA 3.7
 PSA on 7-13 , 0.3
 PSA on 11-13 , 0.3
 PSA on 5-14 ,  0.3
 PSA on 7-14 ,  0.2
 PSA on 11-14,  0.2

JAV
Posted: Saturday, February 21, 2015 5:28 AM
Joined: 10/29/2010
Posts: 800


Mac :

You could see Dr. Katz in Flushing, NY  or Dr. Freeman in Naples, FL  .  From what I hear, you couldn't go wrong with either .  Haven't heard of anyone else closer to you.  Or you might want to check out the CK Center at the University of Pittsburgh Medical Center.  Go to the Accuray website for more locations.  Have a copy of you last biopsy report & PSA result.

JAV


Treated with CK 4-2011.  Gleason of 3+4 , PSA 3.7
 PSA on 7-13 , 0.3
 PSA on 11-13 , 0.3
 PSA on 5-14 ,  0.3
 PSA on 7-14 ,  0.2
 PSA on 11-14,  0.2

radsrus
Posted: Saturday, February 21, 2015 4:00 PM
Joined: 10/10/2008
Posts: 4435


No need to know about the situation in this case. The new lead radiation oncologist has already said he won't be treating patients for prostate cancer with the CyberKnife. The new groups is a new group of radiation oncologists. The business owner is the Sisters of St. Mary/St. Anthony Hospital.

Clinton A. Medbery, III, M.D. Southwest Radiation Oncology buddy@swrads.org
WDC
Posted: Saturday, February 21, 2015 6:06 PM
Joined: 6/22/2013
Posts: 4




Ed
WDC
Posted: Saturday, February 21, 2015 6:24 PM
Joined: 6/22/2013
Posts: 4


Hi Mac, I was treated with CK at Georgetown University Hospital ( Lombardi Cancer Center) in Washington DC at age 59 with PSA 6.2 and Gleason 3+4. I have been very satisfied with the staff and the hospital, and especially with the results so far ... it has been almost 18 months since I was treated, and my last PSA was 0.2. I know DC is a quite a distance to travel from NC, but if you decide to travel within the mid-Atlantic for CK treatment, Georgetown is another option available.

Ed
JAV
Posted: Sunday, February 22, 2015 5:54 AM
Joined: 10/29/2010
Posts: 800


Dr. Medberry :

Thanks for clearing that up.  So, if a patient sees a R.O. that's not in the "new" group ( such as you ) they may still be treated with CK ?

JAV

Treated with CK 4-2011.  Gleason of 3+4 , PSA 3.7
 PSA on 7-13 , 0.3
 PSA on 11-13 , 0.3
 PSA on 5-14 ,  0.3
 PSA on 7-14 ,  0.2
 PSA on 11-14,  0.2

radsrus
Posted: Sunday, February 22, 2015 6:20 AM
Joined: 10/10/2008
Posts: 4435


I am no longer at St. Anthony Hospital. If I were to see a new patient wanting CK treatment for prostate cancer, I would send them to Dr. Fred Willison in Tulsa. He is very good

Clinton A. Medbery, III, M.D. Southwest Radiation Oncology buddy@swrads.org
alan katz md
Posted: Tuesday, February 24, 2015 10:47 AM
Joined: 10/10/2008
Posts: 562


I think that a Gleason 3+4 does better with SBRT than with IMRT. As Allen E said I have a 94% dfs at 7 years with 3+4. As Isadore Baline and Agnes Zimmerman said, "Who could ask for anything more?" Where is that from?

Alan J Katz MD JD

Flushing Radiation Oncology

40-22 Main St  Flushing NY

akatzmd@msn.com

 


alan katz md
Posted: Tuesday, February 24, 2015 10:48 AM
Joined: 10/10/2008
Posts: 562


Buddy Sorry to hear that you are not at St Anthonys. Will you have no access to a CK? Where will you be treating?

Alan J Katz MD JD

Flushing Radiation Oncology

40-22 Main St  Flushing NY

akatzmd@msn.com

 


alan katz md
Posted: Tuesday, February 24, 2015 10:49 AM
Joined: 10/10/2008
Posts: 562


Buddy Sorry to hear that you are not at St Anthonys. Will you have no access to a CK? Where will you be treating?

Alan J Katz MD JD

Flushing Radiation Oncology

40-22 Main St  Flushing NY

akatzmd@msn.com

 


JAV
Posted: Tuesday, February 24, 2015 11:37 AM
Joined: 10/29/2010
Posts: 800


Dr. Medberry :

And I hope your results will continue to be immaculate as they were at St. Anthony's , with or without CK.

JAV


Treated with CK 4-2011.  Gleason of 3+4 , PSA 3.7
 PSA on 7-13 , 0.3
 PSA on 11-13 , 0.3
 PSA on 5-14 ,  0.3
 PSA on 7-14 ,  0.2
 PSA on 11-14,  0.2

radsrus
Posted: Tuesday, February 24, 2015 12:05 PM
Joined: 10/10/2008
Posts: 4435


I have been offered access to a CK in Tulsa, but the logistics are difficult, so I will probably just refer patients that need SBRT. I still have access to the Gamma Knife.

Clinton A. Medbery, III, M.D. Southwest Radiation Oncology buddy@swrads.org
Allen_E.
Posted: Tuesday, February 24, 2015 12:51 PM
Joined: 8/8/2010
Posts: 666


Can GammaKnife be adapted for use on the prostate? I thought it was only used on for brain SRS.
- Allen (not an MD)
alan katz md
Posted: Tuesday, February 24, 2015 1:20 PM
Joined: 10/10/2008
Posts: 562


Gamma can treat prostate if a patient's head is up his ----

Alan J Katz MD JD

Flushing Radiation Oncology

40-22 Main St  Flushing NY

akatzmd@msn.com

 


alan katz md
Posted: Tuesday, February 24, 2015 1:25 PM
Joined: 10/10/2008
Posts: 562


BTW I meant George Gershovitz, not Izzy Baline. Also Agnes Zimmerman

Alan J Katz MD JD

Flushing Radiation Oncology

40-22 Main St  Flushing NY

akatzmd@msn.com

 


Allen_E.
Posted: Friday, February 27, 2015 11:03 AM
Joined: 8/8/2010
Posts: 666


LOL! I like your use of their original family names. Yes, George Gershwin (actually born Jacob) and his brother Israel, not Irving Berlin, wrote it, and Ethel Merman sang it in "Girl Crazy." I would hate to go up against you in Trivial Pursuit, especially on the subject of olde tyme musicals and movies.
- Allen (not an MD)
alan katz md
Posted: Saturday, February 28, 2015 10:35 AM
Joined: 10/10/2008
Posts: 562


Allen E You are right . George was Jacob, named after his grandfather Yaacov, which is my middle name. I do love this music quite a lot. I will never forget the time that I admitted Richard Rodgers to Lenox Hill Hospital as an intern in 1977. He said that melodies came to him in his dreams. He would awaken and go straight to the piano.

Alan J Katz MD JD

Flushing Radiation Oncology

40-22 Main St  Flushing NY

akatzmd@msn.com

 


alan katz md
Posted: Saturday, February 28, 2015 10:37 AM
Joined: 10/10/2008
Posts: 562


For everyone else, the song is I Got Rhythm, which ends with the line who could ask for anything more? Girl Crazy is a great show and was made into a film with Mickey Rooney and Judy Garland.

Alan J Katz MD JD

Flushing Radiation Oncology

40-22 Main St  Flushing NY

akatzmd@msn.com

 


wmc3
Posted: Monday, March 30, 2015 7:41 AM
Joined: 2/19/2015
Posts: 6


For those of you that traveled elsewhere for treatment, how did that work out? How about follow up after treatment, or dealing with complications? Did you use a local Uro or did you travel back to your original provider? Looking back, any regrets on that decision? Thanks! Mac
JAV
Posted: Monday, March 30, 2015 11:41 AM
Joined: 10/29/2010
Posts: 800


Mac : I had my treatment 160 miles from home in Ann Arbor ( St. Joe's ) , but can now see my R.O. at a remote office in Brighton, which is a little closer for me. My R.O. had a local Uro. in Ann Arbor insert the fiducials. That was the only time I saw him. Nice guy and he did a fantastic job - he ordered an xray and showed it to me about 30 minutes after placement. My "regular" Uro. is in Indianapolis ( long story ) at the IUCP , about 330 miles from my home. I had ( at my request ) every other day treatments and I drove back & forth from home. If I did it over again, I probably would just stay in Ann Arbor for the duration of my treatment. Plenty to do and see there. But I had no problems with driving after treatments. I don't mind the drive to either location for check-ups since I'm retired and haven't had any problems after treatment. And I'm now on a yearly schedule instead of every six month ( with each Dr. ). Where are you located and what Center do you have in mind ? JAV

Treated with CK 4-2011.  Gleason of 3+4 , PSA 3.7
 PSA on 7-13 , 0.3
 PSA on 11-13 , 0.3
 PSA on 5-14 ,  0.3
 PSA on 7-14 ,  0.2
 PSA on 11-14,  0.2

truckertaz
Posted: Monday, March 30, 2015 3:19 PM
Joined: 3/30/2015
Posts: 6




truckertaz
truckertaz
Posted: Monday, March 30, 2015 3:22 PM
Joined: 3/30/2015
Posts: 6


I recently was diagnosed and weighing all the options. My PSA was 5.3 and 1/12 core samples showed a 4/3 Gleason score. I really want to do the cyberknife but am leary of longterm recurrences, etc. Anyone out there with a 4+3 gleason who has done the cyberknife? Any help would be appreciated.

truckertaz
JAV
Posted: Monday, March 30, 2015 3:37 PM
Joined: 10/29/2010
Posts: 800


truckertaz : That would almost be me. I had a 3+4 but I had two positive cores. I'm doing fine. BTW, there is essentially no difference in long term outcomes, as far as the CaP not returning, comparing CK with RP ( surgery ). Since it's possible that there may be undetected microscopic CaP outside the prostate capsule, surgical removal is no guarantee that a guy won't have a problem after removal, down the road. If a urologist tells you different, get the heck out of his/her office, IMHO. Good luck, please keep us posted and/or keep asking more questions. Here is a link to some info. I have collected : http://members.triton.net/vandenbe/CAP/CaPArticles_AUAGuidlines.htm JAV ( not a MD, DO, or PhD )

Treated with CK 4-2011.  Gleason of 3+4 , PSA 3.7
 PSA on 7-13 , 0.3
 PSA on 11-13 , 0.3
 PSA on 5-14 ,  0.3
 PSA on 7-14 ,  0.2
 PSA on 11-14,  0.2

wmc3
Posted: Monday, March 30, 2015 7:42 PM
Joined: 2/19/2015
Posts: 6


Jav, Thanks for the specifics on how you worked your treatment. I'm in N.C. and am about 550 miles from New York, probably 325 from D.C. And, as to trucker's question, I wonder what the most common reason is for CK or other radiation treatment failures/recurrences. Is it that the PCa has already spread and we didn't know it, or are some a failure to adequately treat the PCa in or along the margins of the prostate? Mac
Dx 2010, G6, 1 of 12 cores, 5-10%, 2.3 PSA, father had PCa. Active Surveillance 2010-2014; biopsies showing no change. Jan 2015 biopsy: 3 of 12 cores, Gleason 3+4, 10-15%, 2.5 PSA. Now considering treatment options.
JAV
Posted: Tuesday, March 31, 2015 4:26 AM
Joined: 10/29/2010
Posts: 800


Mac: That's a good question for the Docs. You are basically asking about what happens more, a "local" or "distant" failure ? I believe most plans do deliver a little more radiation to the outside areas of the prostate, because any CaP there has more of a chance moving outside the capsule. The bottom line however, is that CK ( SBRT ) gives just as good or better results than any other treatment , with less short term and long term mild or severe side effects. My CaP and treatment has basically been only a bump in the road for me. JAV ( not a MD, DO, or PhD )

Treated with CK 4-2011.  Gleason of 3+4 , PSA 3.7
 PSA on 7-13 , 0.3
 PSA on 11-13 , 0.3
 PSA on 5-14 ,  0.3
 PSA on 7-14 ,  0.2
 PSA on 11-14,  0.2

radsrus
Posted: Tuesday, March 31, 2015 4:32 AM
Joined: 10/10/2008
Posts: 4435


Local control is very high with a variety of techniques, perhaps highest with CK and HDR brachytherapy. The reason for failure is more often distant failure, representing disease that had spread before the cancer in the prostate was treated.

Clinton A. Medbery, III, M.D. Southwest Radiation Oncology buddy@swrads.org
alan katz md
Posted: Thursday, April 02, 2015 10:50 AM
Joined: 10/10/2008
Posts: 562


With intermediate risk pts, I have seen a 3-4% local relapse in the prostate. THere is about a 8-10% of distant disease. Both numbersd are at eight years.

Alan J Katz MD JD

Flushing Radiation Oncology

40-22 Main St  Flushing NY

akatzmd@msn.com

 


JAV
Posted: Thursday, April 02, 2015 4:55 PM
Joined: 10/29/2010
Posts: 800


Mac : So even surgical removal of the prostate cannot prevent a "distant" failure. JAV ( not a MD, DO, or PhD )

Treated with CK 4-2011.  Gleason of 3+4 , PSA 3.7
 PSA on 7-13 , 0.3
 PSA on 11-13 , 0.3
 PSA on 5-14 ,  0.3
 PSA on 7-14 ,  0.2
 PSA on 11-14,  0.2

jnowell
Posted: Monday, April 20, 2015 11:21 AM
Joined: 1/20/2010
Posts: 11


Hi, WMC3. I haven't visited this board in a while. I had CK in May of 2010 at UNC. First path report sent to the lab by the urologist came back a Gleason 6. The same slides sent to the lab by UNC came back Gleason 7 (3+4). My PSA at treatment was 7.1 and I had 9 of 12 positive cores. I asked the radiation oncologist at UNC what he though I should do. He stated, that since I was Gleason 7 with so many positive cores, he would not recommend CK, but traditional IMRT. I decided to go with CK. Back then, the doctor had to fight with BCBS to get approval, but he finally did and I had 4 consecutive days of treatment (Dr. Fuller's trial). I have had very good results so far, and my PSA for the past two years has been undetectable (less than .01). It could be that you are getting the standard answer about treatment for those over Gleason 7. Let them know that you want to go with CK, if that is indeed the case. Best wishes.

jnowell
alan katz md
Posted: Wednesday, April 22, 2015 8:22 AM
Joined: 10/10/2008
Posts: 562


The Gleason of 3+4 is no problem. Look at my latest paper. It shows almost as good results with 3+4 as 3+3. Getting standard 81 Gy for more aggressive disease makes no sense to me. You would want the higher dose that we give with SBRT, equivalent to 90 Gy at 1.8 Gy per day.

Alan J Katz MD JD

Flushing Radiation Oncology

40-22 Main St  Flushing NY

akatzmd@msn.com

 


truckertaz
Posted: Tuesday, April 28, 2015 8:08 AM
Joined: 3/30/2015
Posts: 6


Thanks for the info and comments from everyone. Diagnosed 3/11/15 w/PsC. PSA 5.2 GS 7(4+3) w/1/12 core sample. After research and questions, decided to do CK. Advised by Urologist to do hormone blocker (Lupron injection) before trtmt. This caused flu like symptoms for a few hours a day three days in a row w/some fatigue. That has passed. Started CK trtmt.4/13/15. Last trtmt.4/22/15. Had urination problems (pain and urgency w/incomplete bladder evacuation). Now taking Flomax and it helps but still having minor pain once in a while. Getting up 1 to 2 times per night to urinate. Better than 4 to 5 times pre-Flomax. However, I do drink a lot of water and java , but have cut down quite a bit w/fluid intake which in turn is slowing down the output. I am feeling somewhat fatigued late afternoon or early evening but feel pretty good considering the trauma my you-know-what was just put through. Did CK at Colo.CK in Lafayette , CO and would recommend it to any one considering CK. Dr. C. Simpson and the entire staff are very compassionate and informative. So now I'm doing the waiting game but feel confident all is well. Once again , thanks for the info and comments and will update as I go. truckertaz

truckertaz
truckertaz
Posted: Tuesday, April 28, 2015 8:08 AM
Joined: 3/30/2015
Posts: 6


Thanks for the info and comments from everyone. Diagnosed 3/11/15 w/PsC. PSA 5.2 GS 7(4+3) w/1/12 core sample. After research and questions, decided to do CK. Advised by Urologist to do hormone blocker (Lupron injection) before trtmt. This caused flu like symptoms for a few hours a day three days in a row w/some fatigue. That has passed. Started CK trtmt.4/13/15. Last trtmt.4/22/15. Had urination problems (pain and urgency w/incomplete bladder evacuation). Now taking Flomax and it helps but still having minor pain once in a while. Getting up 1 to 2 times per night to urinate. Better than 4 to 5 times pre-Flomax. However, I do drink a lot of water and java , but have cut down quite a bit w/fluid intake which in turn is slowing down the output. I am feeling somewhat fatigued late afternoon or early evening but feel pretty good considering the trauma my you-know-what was just put through. Did CK at Colo.CK in Lafayette , CO and would recommend it to any one considering CK. Dr. C. Simpson and the entire staff are very compassionate and informative. So now I'm doing the waiting game but feel confident all is well. Once again , thanks for the info and comments and will update as I go. truckertaz

truckertaz
truckertaz
Posted: Tuesday, April 28, 2015 8:08 AM
Joined: 3/30/2015
Posts: 6




truckertaz
truckertaz
Posted: Tuesday, April 28, 2015 8:10 AM
Joined: 3/30/2015
Posts: 6


I'm not too good at computers but can spell OK!truckertaz

truckertaz
JAV
Posted: Tuesday, April 28, 2015 10:51 AM
Joined: 10/29/2010
Posts: 800


truckertaz : Thanks for the update. Please keep us posted. All the Best to You and let there be only low PSA's in your future, JAV

Treated with CK 4-2011.  Gleason of 3+4 , PSA 3.7
 PSA on 7-13 , 0.3
 PSA on 11-13 , 0.3
 PSA on 5-14 ,  0.3
 PSA on 7-14 ,  0.2
 PSA on 11-14,  0.2

wmc3
Posted: Friday, May 01, 2015 8:06 PM
Joined: 2/19/2015
Posts: 6


jnowell, Thanks for the info about your experiences at UNC. Certainly has turned out well for you so far. I was diagnosed in 2010 and talked to the UNC CK guys about the same time you were treated. You are right in that they will provide CK now if I insist on it. But, having someone administer treatment that they recommended against doesn't exactly inspire confidence in the outcome or in whatever protocols they may be using. I decided to stick with CK but just go elsewhere where I felt like everyone was on the same page. Not as convenient, but hopefully worth the trouble. Mac
Dx 2010, G6, 1 of 12 cores, 5-10%, 2.3 PSA, father had PCa. Active Surveillance 2010-2014; biopsies showing no change. Jan 2015 biopsy: 3 of 12 cores, Gleason 3+4, 10-15%, 2.5 PSA. CK scheduled for May '15.
jnowell
Posted: Wednesday, May 06, 2015 9:42 AM
Joined: 1/20/2010
Posts: 11


wmc3 Good luck with your decision. Sorry, I did not mean to imply that I demanded CK at UNC against the doctor's will. I simply think, at least at that time in 2010, UNC was only recommending CK for Gleason 6 or less. I had done plenty of research, and with a 3+4 Gleason, made my decision to go with CK and the doctor was happy to proceed. The decision was mine - sink or swim. So far, so good, but time will tell. Best wishes.
jnowell
Mike22304VA
Posted: Tuesday, August 04, 2015 6:58 PM
Joined: 8/4/2015
Posts: 1


CK for Gleason 8? Would like to know if CK is used with good
results with Gleason score 8 (3+5 in 2/12 30% &10%). PSA went from 3.7 to 4.4 in 6 months.  Just had CT and whole body bone scans and no evidence of metastic CA.
My age is 73 and I am trying to avoid surgery. Would like comments from Drs and others with high gleason.

SteveK364
Posted: Saturday, July 14, 2018 8:40 PM
Joined: 6/26/2018
Posts: 69


JAV, I live in Michigan as well and will be having a consultation with St. Joes in AA about CK treatment. Were you happy with their work? They said they've had CK for about 11 years and treat about 10-15 prostates per year. I would be interested in hearing about your experience there. Please drop me a personal note, so we can correspond. Thanks, JAV! Steve

SteveK364


JAV
Posted: Sunday, July 15, 2018 6:12 AM
Joined: 10/29/2010
Posts: 800


Hi Steve: I am very happy with the service and results I obtained at St. Joe’s. In fact I have a yearly follow-up appt. with Dr. Henning this week. My PSA went below 0.5 within 22 months after treated in April of 2011 and has been below 0.2 for the last 4 years. Absolutely no bowel or urinary issues. After treatment for a few weeks, I sometimes would become a little fatigued, but I learned hydrating and a 15 minute rest would take care of the fatigue. My last PSA in January was 0.13 . I hope your results will be as good as mine, Jim V.

Treated with CK 4-2011.  Gleason of 3+4 , PSA 3.7 , two cores positive, 5% & 12%
 PSA on 7-13 , 0.3
 PSA on 11-13 , 0.3
 PSA on 5-14 ,  0.3
 PSA on 7-14 ,  0.2
 PSA on 11-14,  0.2
PSA on 3-15, 0.2 PSA on 7-15, 0.2 PSA on 7-17 0.1 PSA on 1-18 0.13
SteveK364
Posted: Sunday, July 15, 2018 6:31 AM
Joined: 6/26/2018
Posts: 69


That's great to hear Jim! Is that your story that's posted on their website? It's by a "Jim" who was treated at St. Joes. Just curious. Thanks, Steve

SteveK364


 

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