Patient Forum

The CyberKnife Patient Forum is designed to provide a place for people who have been diagnosed with cancer, their family and friends, to exchange useful information and provide support to one another. The Forum may also help people find answers to questions they have about the CyberKnife treatment experience. Accuray strives to facilitate these exchanges and encourage discussions. Recently we have experienced some aggressive or inappropriate spam postings. We are diligently working to resolve this issue and thank you in advance for your patience.

Birgit Fleurent, Chief Marketing Officer, Accuray Incorporated

Please help with advice about brain cancer!
Posted: Friday, December 29, 2017 6:19 AM
Joined: 12/29/2017
Posts: 1

My sister has 3 kids (41 years) in May 2017 was diagnosed in Anoplastic multiform glioma. Pathology report shows: MGMT - Non methylated IDH1 (R132) negativ (IHC) PCR signal unmethylierte sequenz - positiv PCR signal methylierte sequenz - negativ ATRX: partieller Verlust (IHC) H3K27M: negativ (IHC) From August 2017 she got Temodal for 3 months (7 days in, 7 days off) growing continue. In November she got Avastin +, Ironatecan, growing continue. December: just Avastin Now she is getting: Kepra 3000 Vimpat 100 Dexamethason 8 mg Vitamin C, B, D L-Carnitin+Lymphdiaral Boswellia serrata Unizink Kytta Sedativu RSO - 0,5 a day Ajurvedic treatment Plan to have Optune in 10 days. So far we cant stop the growth. Can you please advice useful protocol/treatment plan which can help stop tumor grow? Many thanks in advance. Best regards, Leonid Gluskin

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