Patient Forum

The CyberKnife Patient Forum is designed to provide a place for people who have been diagnosed with cancer, their family and friends, to exchange useful information and provide support to one another. The Forum may also help people find answers to questions they have about the CyberKnife treatment experience. Accuray strives to facilitate these exchanges and encourage discussions. Recently we have experienced some aggressive or inappropriate spam postings. We are diligently working to resolve this issue and thank you in advance for your patience.

Birgit Fleurent, Chief Marketing Officer, Accuray Incorporated

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Intermediate Risk
JOEW1
Posted: Thursday, August 09, 2018 1:59 PM
Joined: 8/9/2018
Posts: 5


So, my name is Joe Wines. I am a 52 year old man. I was diagnosed in May with prostate cancer T1C. My PSA at time of DX was 3.7 (i self refered to a URO becuase it was a big jump from the year prior. It was confirmed and then a 4K test showed intermediate risk. I had a 3T MRI - shows everything is contained. Targeted Biopsy showed 3 areas. The biospy says I have gleason 7 (3+4) in 1 core, less than 10% gleason 4, another core at gleason 7 (3+4) in 1 core less than 5% gleason 4 but PNI. A 3rd core gleason 6. So 3 of 15 cores positive. I am scheduled for CyberKnife on 9/10. I already had fiducials & scans. Dr. Haas at Winthrop/NYU is my Doctor. I'm a bit nervous because all the doctors who see me are not concerned about that PNI but than I read in some places I should have hormone therapy. Any feeling on adding Hormone Therapy? Is CK a good choice? I have no idea why I am second guessing.
Joe
SteveK364
Posted: Thursday, August 09, 2018 2:41 PM
Joined: 6/26/2018
Posts: 29


Hi Joe, I too will be having CK within the next month or so. Are they using SpaceOAR with you? That's the gel that they use to help protect the rectum from radiation. If you had it implanted, was there much discomfort afterward? Thanks. Steve

SteveK364


JOEW1
Posted: Thursday, August 09, 2018 5:43 PM
Joined: 8/9/2018
Posts: 5


Hey Steve. They are not doing the spaced gel. They are giving me some type of injection every morning to protect me. I forget the name of the medication. I’ll get back to you.

Joe
SteveK364
Posted: Thursday, August 09, 2018 6:11 PM
Joined: 6/26/2018
Posts: 29


OK. Where are you having your treatment? I will be at St. Joes Mercy in Ann Arbor, Michigan.

SteveK364


JOEW1
Posted: Friday, August 10, 2018 3:29 AM
Joined: 8/9/2018
Posts: 5


Steve - I’m having my treatment at Winthrop/NYU in New York. I feel confident in my doctors. The only that keeps nagging me is did the 3T MRI guided biopsy identify all the cancer and does PNI make my prognosis worse. So much still unknown about PC. I have to put my faith in God.

Joe
JOEW1
Posted: Friday, August 10, 2018 3:29 AM
Joined: 8/9/2018
Posts: 5


Steve - I’m having my treatment at Winthrop/NYU in New York. I feel confident in my doctors. The only that keeps nagging me is did the 3T MRI guided biopsy identify all the cancer and does PNI make my prognosis worse. So much still unknown about PC. I have to put my faith in God.

Joe
DXM
Posted: Friday, August 10, 2018 9:34 AM
Joined: 9/10/2016
Posts: 18


Well I had a saturation biopsy. Detected a tumor with Gleason 4+5 with one core with PNI. I'm 21 months out from Cyberknife (with radiation boost to the tumor) and my last two 3-month PSA's have been undetectable (<0.02). But results vary, so not every one will reach undetectable PSA. In my observation, it shouldn't matter if the MRI identified all the cancer. The CK is going to zap all the gland and several millimeters around it and if it is done right, a radiation boost will be given to known lesions.

DAMorris
SteveK364
Posted: Saturday, August 11, 2018 5:55 PM
Joined: 6/26/2018
Posts: 29


I think Winthrop is a good choice. You should be in good hands, Joe!

SteveK364


JOEW1
Posted: Tuesday, August 14, 2018 5:16 AM
Joined: 8/9/2018
Posts: 5


Thank you DA and Steve. I really appreciate the feedback. I wish you guys and I’ll keep you in my prayers. Have a great day

Joe
JAV
Posted: Wednesday, August 15, 2018 5:47 AM
Joined: 10/29/2010
Posts: 763


CaP is easily cured if caught early. Be thankful you don't have pancreatic or lung cancer. I was treated back in 2011 and it was basically a bump in the road. I'm thankful I discovered CK instead of going through standard radiation or RP. Good luck to you all !!

Treated with CK 4-2011.  Gleason of 3+4 , PSA 3.7 , two cores positive, 5% & 12%
 PSA on 7-13 0.3  PSA on 11-13 0.3 PSA on 5-14   0.3  
PSA on 7-14   0.2 PSA on 11-14  0.2 PSA on 3-15 0.2
PSA on 7-15, 0.2 PSA on 7-17 0.1 PSA on 1-18 0.13
 

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